LDA Research - Medical Market Research

LDA Research - Medical Market Research International medical market research for the pharmaceutical industry and medical device sector. The group is free to join, and there are no obligations.

We are LDA Research, providing international medical market research for the pharmaceutical industry and medical device sector, specialising in proactively recruiting hard-to-access healthcare professionals and people with a rare disease diagnosis. Our research spans the globe to help drive advances in healthcare from diagnosis to treatment and support innovations in medical device development. We

are the home of the Rare Disease Network, a community of people affected by a rare disease diagnosis. We are bringing people from across the globe together, united by what makes them unique; being rare together. We provide insight from our own research, access to medical professionals and specialists, with the chance to talk to thought leaders directly. Plus, the opportunity to share thoughts, feelings and worries with people who can resonate with your situation: we are cultivating a growing support network. There will also be chances to take part in paid research, and you’ll get to have your voices heard and stories shared. If you have been affected by a rare disease through being diagnosed yourself, through the diagnosis of a loved one, friend or family member, or you are a rare disease specialist, we invite you to join us.

We're pleased to share the first blog in an upcoming 5-part series on rare disease networks, written by our senior moder...
11/06/2026

We're pleased to share the first blog in an upcoming 5-part series on rare disease networks, written by our senior moderator Leigh Hart.

The opening article explores how rare disease communities evolved from isolated patient groups into the global networks that now connect patients, clinicians, researchers, regulators, and industry worldwide.

From Japan's pioneering Nanbyo programme to NORD, EURORDIS, and IRDiRC, it's an incredibly interesting look at the foundations of today's rare disease ecosystem.

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https://ldaresearch.com/blog/from-isolation-to-infrastructure-the-origins-of-rare-disease-networks-blog-1-5/

09/06/2026

CAE and JAE Patients/Caregivers - Project Allium - This survey is created by QuestionPro

28/05/2026

Selene - Dermatomyositis - This survey is created by QuestionPro

Rare diseases affect an estimated 300–400 million people worldwide, and while progress has historically been slow, the l...
28/05/2026

Rare diseases affect an estimated 300–400 million people worldwide, and while progress has historically been slow, the landscape is beginning to shift. 🩺 ⚕️ 🏥

In our newest blog post written by Leigh Hart, Senior Moderator at LDA Research Ltd, she explores both the encouraging advances and the ongoing challenges in diagnosis and treatment. From targeted therapies such as Lanadelumab for Hereditary Angioedema to emerging progress in conditions like Barth syndrome and Huntington’s disease, there are real examples of improved outcomes for patients.

If you’d like to read the full blog, please click the link



By Leigh Hart, Senior Moderator @ LDA Research Rare diseases affect an estimated 300–400 million people worldwide, yet progress in diagnosis and treatment has historically been slow. Small patient populations, limited commercial incentives, and gaps in clinical knowledge have long created barriers...

22/05/2026

Perseus - T2DM - This survey is created by QuestionPro

Sharing part 2 of Marcus’s story here, as his mother Mariah is part of our Rare Together group. His journey with GRIN2A ...
22/05/2026

Sharing part 2 of Marcus’s story here, as his mother Mariah is part of our Rare Together group. His journey with GRIN2A reflects so many of the challenges families in this community face every day.
If you have a quiet moment, it’s a powerful read.
🔗

At LDA Research, we know that behind every data point is a real person, a real family, and a real story. We’re sharing one of those stories from Mariah from Minnesota, USA. It’s a story about her, her son and navigating a rare disease diagnosis, the challenges of accessing specialized care, and ...

12/05/2026

QuestionPro Survey

06/05/2026

Quality of Life Cancer Research Study for Patients

Study Opportunity In Canada! We are looking for people living with plaque psoriasis to understand what support is needed...
22/04/2026

Study Opportunity In Canada!

We are looking for people living with plaque psoriasis to understand what support is needed and help develop a future patient support program!

Please use the link to fill the screener:

QuestionPro Survey

21/04/2026

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