Rarity Health

18/05/2022

Rarity Health teamed up with Nobelpharma America to support TSC awareness. Participating in three locations around the USA!

28/02/2022

It’s rare disease day, and Rarity Health is showing their stripes in support of lives impacted by a rare disease.
We are proud advocates for health equity and are honored to do our part to raise awareness.

28/02/2021

17/12/2020

https://rarityhealth.com/2020holidaygreeting/

Let's share kindness together. Make a selection from the charities, and we’ll make a donation on your behalf.

26/11/2020

Happy Thanksgiving

03/12/2019

This holiday season, Rarity Health is proud to partner with Toys For Tots of Red Bank, NJ, to put smiles on faces this Christmas morning. If you’re local to Monmouth County, NJ and want to help out, drop off a new, unwrapped toy at our office in Shrewsbury—and stay for a cup of coffee or tea!

1161 Broad St, Ste 118
Shrewsbury, NJ 07702

With your help, we can make a Merry Christmas for local families.

13/09/2019

Developing therapies to treat rare diseases is becoming mainstream.
https://buff.ly/32jSrZE

Why Developing Cures for Rare Disease Isn’t So Rare Anymore These Six Maryland Biotech Companies Are Seeing Success in Targeting Rare Diseases September 3, 2019 Groundbreaking technology and scientific advancements, including cell and gene therapy, have fundamentally changed the way life science c...

13/09/2019

A doctor with a rare condition, Castleman disease , writes a book about his experiences, including his repeated brushes with death and the research he's done on treating his own condition.

After five near-death experiences, a Raleigh native who suffers from a very rare disease will release a memoir that tells about his journey to cure his condition.

12/09/2019

DISORDER: The Rare Disease Film Festival is screening films about rare disease, including Menkes disease, giant axonal neuropathy, USP7 gene mutation, Goldenhar syndrome, PACS1 syndrome, and Angelman syndrome, during Biotech Week Boston.

The festival founders wanted to bring the stories of families living with rare diseases to the people researching and developing new technologies to detect and treat rare disorders.

10/08/2019

The Critical Path Institute and National Organization for Rare Disorders are developing a new data and analytics platform to inform clinical trial design and advance therapies for rare diseases.

09/08/2019

Patients living with rare disease may use the internet to help receive a diagnosis.

The internet can serve as a pathway to diagnosis and care for people who suspect they have a rare condition that has not been identified by their physicians, according to a new study.