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08/18/2026

If you’re like us, work often moves so quickly and the days are so full that we don't pause to celebrate wins or capture lessons that can help us create even greater impact.

The SmithSolve newsletter is an opportunity to do just that. In the latest issue of Showing Up, we share insights from our work and partnerships, offering a look at what’s working, what’s evolving, and where we see opportunities emerging across pharma, biotech, and healthcare.

We believe progress happens when we learn from one another and share what we're seeing in the field. What topics are top of mind for you, and what do we need to tackle next? Leave your comments below.

Subscribe and join the conversation: https://smithsolve.com/ -signup

Imagine spending four days learning alongside 80+ trusted mentors and peers to advance your profession – and then imagin...
07/15/2026

Imagine spending four days learning alongside 80+ trusted mentors and peers to advance your profession – and then imagine the insights that build over a decade of this collaborative training.

The Patient Advocacy Certificate Training (PACT) hosted by PPALS Professional Patient Advocates in Life Sciences remains a highlight of our year at SmithSolve.

Chris Smith and Katie Burns joined fellow faculty members to lead sessions on strengthening communications and developing social media strategies for advocates across industry and non-profits.

Some of the biggest conversations this year focused on:
🔹Supporting patient communities through breakthroughs and setbacks
🔹Showing value in a challenging funding environment

A heartfelt thank you to PPALS founders Jean Campbell, Jayne Gershkowitz, and Barbara Wuebbels for creating a welcoming space where advocates can learn from one another, explore the roots of patient advocacy, and discuss how it applies today and tomorrow.

Save the date and join us for the 2027 PACT, May 16-19 in Sioux Falls, SD.

Sometimes, the simplest acts of kindness leave the biggest impression. Following a patient advisory council last month, ...
07/08/2026

Sometimes, the simplest acts of kindness leave the biggest impression.

Following a patient advisory council last month, we helped our clients and friends at Deciphera Pharmaceuticals deliver stuffed animals to the Waltham Fire Department for distribution to children and others experiencing trauma.

We started the day by listening to patient communities and ended by serving neighbors in the local community. It’s a privilege to work with clients who understand the importance of showing up and giving back.🐻🚒.

Read more from The Waltham Times: https://walthamtimes.org/2026/06/25/waltham-fire-police-get-new-partners-in-comfort/

Wishing you a happy Fourth of July from all of us at SmithSolve, including our very patriotic pup, Tippy. 🐾 How are you ...
07/04/2026

Wishing you a happy Fourth of July from all of us at SmithSolve, including our very patriotic pup, Tippy. 🐾

How are you spending the holiday? 🎆

This month, we asked, “Are We OK?”  More than a dozen leaders in the rare disease community replied. Each had a unique v...
06/30/2026

This month, we asked, “Are We OK?”

More than a dozen leaders in the rare disease community replied. Each had a unique view. All refused to settle for just OK. All are leading by doing.

Thank you to Lisa Butler, Roslyn Schneider, Patti Engel, and Sara Johnson Davis for adding your perspectives below.

What's one change you'd like to see for rare disease communities? Share your thoughts in the comments.

Read the article here: https://www.linkedin.com/pulse/we-ok-chris-smith-xuzge/

Summer Fridays are officially in session! ☀️🍉🏖️ From Memorial Day through Labor Day, our team can sign off early on Frid...
06/26/2026

Summer Fridays are officially in session! ☀️🍉🏖️

From Memorial Day through Labor Day, our team can sign off early on Friday afternoons and kick off the weekend a little sooner. That means more time to soak up the sunshine, recharge, and come back refreshed for the week ahead.

How are you building a little more balance into your summer?

06/25/2026

“Yes, we are ok. But we are not great. Most days, many of us are not even good.”

Listen as Kate Stratton responds to “Are We OK?”, sharing what the rare disease community can no longer accept, and what she hopes the future can look like.

What would a better future for the rare disease community look like to you? Join the conversation in the comments.

This Pride Month, we celebrate the LGBTQ+ community. You belong, you matter, you are seen. We stand with you today and e...
06/22/2026

This Pride Month, we celebrate the LGBTQ+ community. You belong, you matter, you are seen. We stand with you today and every day. 🌈

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Today we recognize World Sickle Cell Day and Juneteenth. Sickle cell disease disproportionately affects the Black commun...
06/19/2026

Today we recognize World Sickle Cell Day and Juneteenth.

Sickle cell disease disproportionately affects the Black community, and gaps in awareness, research, and equitable access to care remain.

As we reflect on freedom, progress, and opportunity, we also recognize the importance of ensuring that every person has access to the care, resources, and support they need to thrive.

We asked the rare disease community a simple question: “Are We OK?” The answers are as unique as the people who share th...
06/17/2026

We asked the rare disease community a simple question: “Are We OK?”

The answers are as unique as the people who share them. What "OK" means can shift from day to day, shaped by personal experience, diagnosis, geography, or health systems.

Yet one theme remains constant: "OK" reflects the resilience of people living with rare diseases and determination of advocates to drive awareness, action, and change.

Thank you to Lilly Grossman, Doug Paul, Sharon King, and Jean Campbell for sharing your perspectives.

Follow along as more voices from the rare disease community share what “OK” means to them.

Are We OK? Share your perspective in the comments.

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